Bee Positive With ASNet!
A good time was had by all at the Family Fun Day on 2nd September; here is a photo of the start of the obstacle race. Well done to the Bees Knees 2 team, who won on the day!
Thanks to Hargreaves Scout Camp for hosting us.
Some sad news; Ela and Lizzie are moving on to work on new projects. We have been working with them for the last two years, getting information on bespoke aids for people with arthritis. Best of luck in your future endeavours ladies, it's been great working with you.
Click on the link below to see videos of some of the products they have introduced us to. They really do help!
We have a new video, 'Arthritis does not discriminate' chronicling the experiences of arthritis sufferers and the impact joining our group has had on their lives. Watch it here.
Our monthly patient education forum was held Thursday 20thJuly at James Fawcett Centre at King George's Hospital.
Dr Kiranjith gave a talk on RA (Rheumatoid Arthritis). Pictures from the talk are below.
NEWS FROM TfL
We have launched a new badge and card to help customers who are less able to stand, get a seat when they need one.
The “Please offer me a seat” badge and card are aimed to alert fellow customers on Public Transport that you are in need of a seat. Following a successful trial, customers said the badge and card made them feel more confident asking for a seat.
Click here to apply for a badge and card
My Swedish Massage experience.
The day after having an Ultra Scan I became aware of pains in the back of my head, they gradually got worse until I couldn't hold my head up, it felt as though someone had thrown two large bricks at me. I am a sufferer of 5 different types of Arthritis and by instinct I knew it wasn't a flare up. As the days passed the pain was more unbearable, I couldn't sleep or go to bed as lying down made the pain worse, for 5 nights I sat in a chair unable to do anything, my head getting heavier that I wished it would drop off.
As luck would have it I belong to Arthritis Self-Help Network, a charity where I do Voluntary work, usually on a Tuesday. I informed Diane (the President) I would not be able to help that week owing to my unknown condition. On Tuesday morning Diane phoned me to remind me that there would be a demonstration of Swedish massage at the Cranbrook Centre, which is located in Valentines Park in Ilford, and she asked if I could get there for a Massage as he needed a volunteer to work on.
My husband took me to the Centre where Kristian Saetre would be giving me the treatment. Kristian was passed by Dr Teresa Doherty, my Consultant Rheumatologist at King George Hospital, to perform this type of massage as being safe for arthritis sufferers.
Kristian had a special chair in which the person leans forward to give him access to massage the back. I was unable to to use the chair properly owing to the pressure it caused as I leaned forward. He worked on me for about 10 minutes sitting upright and I started to feel the weight lift off, enough for me to eventually bend forward to place my face in the hole of the specially designed chair. No one will ever understand how I felt when I was finally able to do what had become impossible for me. Gradually the pain started to go down my right shoulder, I was assured by Kristian it was normal.
I had a half hour session which took away so much of the pain, I could hold my head up again and I felt so relieved by the whole experience. Kristian told me the pains would come and go but they would eventually disperse. Now after 4 days I am feeling almost pain free.
I am so grateful to Diane for reminding me about the massage demonstration and to Kristian for his delicate touch that is still working on the excruciating pain. I am going to sleep in my own bed tonight as the worst of the pain in my head has gone, which means I will be able to lie down.
If you are reading this article and suffer from any form of pain, why not get in touch with Diane? She will be only too pleased to put you in touch with Kristian, you will not regret it, the gentle touch is the way to go. Kristian's website is here
Thank you for reading about my first experience of a massage that has almost rid me of pain and enabled me to get my life back on track.
The Arthritis Self-help Network is a charity based in London supporting people suffering with arthritis. Please watch the short video below to see some feedback from some of our group members about products that help them deal with the condition.
The ASNet support system is a service for anyone diagnosed with one or more of the 200 types of arthritis.
The ASNet model is designed to help a patient at the point of need, empowering them through education and a variety of therapeutic methods to help them cope with the disease on a daily basis.
An edcuated patient is easier to treat, reduces clinical time and is also a cost saving to the NHS.
Mr Sood was a guest speaker at one of our regular Patients' Forums at the King George Hospital Chadwell Heath on 18th March 2017. He is an expert in hand surgery, and his website is here.
Arthritis means literally "Inflammation of the joints". In 2012 there were some 10 million people in UK with arthritis. It is one of the leading causes of disability in the UK today and can cause stiffness and painful swelling in joints. Arthritis can affect people of all ages - indeed, there are over 12,000 children under the age of 16 in the UK who have arthritis (NHS Choices 2012).
The Cranbrook Centre,
0203 730 4141